3-21, 让我们穿上五颜六色的袜子

这一天天的日子就象张白纸,该画啥?如何画?
打印 被阅读次数

 ***
今天,
3
21日,是世界唐氏综合征日(World Down Syndrome Day)。这是我从同事Marcia那里听到的,因为她的小儿患有这种先天性疾病。

唐氏综合征,又称先天愚型或Down Syndrome,  是由染色体异常而导致的疾病,主要是第21号染色体比正常人的两条多了一条,321日成为唐氏综合征日便是由此而来的。患有该遗传病者有明显的智能落后、特殊面容、生长发育障碍和多发畸形等病征。

说起唐氏综合征, 我不由地想起了孩子最近给我讲的一桩非常温馨感人的故事

与往年一样,在学校情人节舞会的前一周,学生们要投票选出最令人心仪的10 位“王子”和10 位“公主”来组成“Royal Court”。在舞会前日,还要宣布KingQueen的皇冠“冠”落谁家。众所共知,学校橄榄球队里英俊的Quartback和拉拉队里俏丽的领舞,往往是少男少女心目中最荣耀头衔的热门人选。我在那名单里瞥见了一位华裔小伙儿的名字, 心里便暗暗地替他加油。舞会结束后,孩子给我带来了一个出乎意料的消息。患有唐氏综合征的Jake是今年Sweetheart DanceKing。孩子笑着说,“今天,Jake很帅呀 。他的父母也 参加了晚会。他的妈妈流了很多眼泪”。我听后,内心由衷地感动。我替所有的学生们自豪,因为他们懂得如何尊重关爱他人,特别是那些与自己不一样的弱势的人群。下面的相片,选自我们小镇的报纸,它正是记载了舞会上美妙欢快的一刻, 愿它永远留在Jake的记忆里。

 

我的同事Marcia还把唐氏综合征日的Logo告诉了我,希望让更多的人了解这个日子,关注这个特殊人群。她说,今天,我们全家要和孩子一起,穿上五颜六色的好玩的袜子,因为有唐氏综合征的孩子们的生活也应该是五颜六色的。

  

 

瞧,这篇小文也是五颜六色的了。




更多我的博客文章>>>

 

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