4/4/2018 按预定下午1点要见A医生。在家先准备了一份备忘录,对过去几周内所做过各种检查及有关咨询列表。写明讨论结果及检测结果。那些需要医生出示最终报告。
上午照常上班。
12:05PM 在一楼取血室签到,五分钟后抽了三管血,送检血细胞分类计数、肝肾功能。
12:50PM 到七楼候诊大厅签到,付了四十刀扣赔。等待……
1:20PM 护士出来,向我们招手。来过许多回了,认识了。量了体重、血压、体温,再重复以往常规问答。等待
1:40PM 医生终于出现了。问候之后,把备忘给他,双方就共同关心的内容展开深入探讨。
尤其是跨关节下方软组织活检的病理报告,我没有事先看到。A医生再次核对最终报告,示给我看,只是软组织增生,没有恶性细胞。立马从椅子上跳起,激动!溢于言表。
待冷静下来后,讨论了如何解决末抽出胸水那位女胸外科医生。A医生表示他会在适当时间访问抽胸水的处置室,再决定是否送其他患者去那里。
我表示要向院方申诉,A医生说:那是你的权利,你自己决定。
接下来继续讨论我的病情。A医生认为不排除潜在性癌细胞生长,只是还没有大到被发现而已。继续现有的生活工作方式,不易过劳。强调绝大多数我这种四期肺癌患者会在治疗停止后两年內复发。我这种身体状况越来越好的极少见到。
约定六周回访,下次面诊前做CT,以评估原发灶中癌细胞活跃程度。CEA不能做为肺癌的特异性标记,以后不测了。
至此,双方就共同关心的问题达成共识並提出可行性解决方案。面诊在友好热烈的气氛中结束。
与癌共存,是目前可达到理想状态。
努力吧,再过半年就停药两年了。人生的路就这样一步步走出来的。
在此向一直关注我的朋友们致谢。
附录:本次面诊的备忘。这个很重要,不会遗漏重点,医生留一份写病历。
Memo for the Appt with Dr. A. at 4/4/2018
Procedures and Exams since the last Appt.
3/7/2018 PM XR HIP RIGHT AP LATERAL WITH PELVIS
3/19/2018 Consulted with JASON L MUESSE, MD for the possible surgical remove.
Not in consideration.
3/20/2018 Consulted with SANJAY MARABOYINA, MD for the possible radiation therapy.
Might be a option
3/22/2018 AM UAMS Interventional Radiology Department: IR BONE BIOPSY DEEL
No final Path report
3/22/2018 PM Surgery Clinic -- Outpatient IR: Paracentesis for the pleural effusion
A female Doctor (Name?) did the procedure by inserting a needle at back with sitting position.
Failed to draw anything, and the Doc gone without apology.
Any report in medical history? I got the bills for the procedure.
I really suspect whether the facility and attending doctor(s) are qualified for the procedures. Strongly recommend a review by UAMS.
Should I fill an official complain?
3/27/2018 Gastroenterology Clinic: Evaluation with Donna L. Dunn, APRN, CNP for the prep.
4/2/1018 ENDOSCOPY, COLON: Performed by BENJAMIN THARIAN, MD
Saw the procedure report and path report
Last week a lady on behalf of Dr. SANJAY MARABOYINA called for CT evaluation. Waiting.
Current status
1. Chest pain: sore and dull at left lower chest wall: front and side (2); back (3 on 1 to 10 scale).
2. Short breath sometimes. SpO2 at 96 to 97% without exercise.
3. Dry cough when speaking too much.
Consideration
CT?
Another Thoracentesis?